Full Thyroid Testing and Medication access.

My idea is to give thyroid patients better testing to allow for better treatment and access to correct medication.

Why the contribution is important

I think that all thyroid patients should be given a full thyroid panel routinely with better medication access. Many thyroid patients do not have adequate care or support in understanding their diagnosis and only testing TSH and prescribing Levothyroxine is not the only medication for treatment. A full panel is needed to understand the thyroid is funtioning, and then the correct medication can be prescribed.

by DdramaLlama on August 20, 2019 at 10:55AM

Current Rating

Average rating: 5.0
Based on: 6 votes

Comments

  • Posted by VA49 August 20, 2019 at 12:04

    I totally agree with above suggestion. I further would suggest that there is a GP within each practice who specialises in thyroid conditions and as such increases their expertise and is enabled to keep up to date with current research. It might be prudent to test for associated auto immune conditions if patient unwell.
  • Posted by mairidp August 20, 2019 at 19:41

    I agree with the original comment - living with an undiagnosed underactive thyroid is soul destroying - and the promise of "this is easy to fix, just take these tablets for the rest of your life" is not the reality of living in Norfolk with a thyroid issue. The approach of testing TSH only and prescribing to that without taking into account the reduction of symptoms - or not - appears to be leaving me under-treated and it's therefore affecting my quality of life. Parts of my area have a high thyroid issues score on the Index of Deprivation (see the Roundwell Medical Practice original planning application supporting documents) but the money is not being routed here to handle the level of people affected.
  • Posted by Feedback30 August 20, 2019 at 19:48

    I currently choose to go Cambridgeshire for my hypothyroid care caused by Hashimoto’s Autoimmune condition, as lack of knowledge about the condition here in Norfolk I found shocking. The care I get there is far superior to Norfolk care. I would suggest liaison with your colleagues over there to learn what they are doing well and replicate that. I imagine it will start with getting rid of the prejudice that I’ve encountered, that hypothyroidism is “simple” and doesn’t require specialist care. In my experience dosage of thyroid replacement hormones requires absolute precision and skill.
    There also needs to be a lot more knowledge, support and testing around autoimmunity which is completely neglected by NHS. I have to pay for my own private tests because I understand more than the medics about autoimmunity and do not want to wait until it’s destroyed another organ to get NHS involvement.
  • Posted by Aratenaj August 21, 2019 at 21:06

    I totally agree with this suggestion, and the comments already added.
    Thyroid diagnosis and treatment in Norfolk can be very inadequate. Having poor treatment, or no treatment when needed, can leave patients unable to function. Some are left housebound, or bed bound. Patients are not listened to. Patients have to do their own research into their condition, they have to buy private thyroid blood tests, some have to self source medication that actually works.
    This is not acceptable.
    This situation leaves patients costing the Norfolk NHS economy more in unnecessary tests, and other drugs to help mask the symptoms which decent thyroid treatment would eliminate.
  • Posted by Sall August 27, 2019 at 10:53

    Make sure that these tests invite the mentally ill for these tests as they are the silent neglected!thyroid testing should be carried out
    Along with blood pressure
    Unfortunately Norfolk lacks the knowledge in many fields and should be working with teaching hospitals in London
    Dangerous to become ill in Norfolk in my opinion
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